Laurie
Davenport, Iowa, United States

• Joint Pain 
  
• Muscle Pain 
  
• Brain Fog 
  
• Inability to recall words 
  
• Anxiety 
  
• Depression 
  
• Sleep Disorders 
  
• Bowel Disorders 
  
• High Blood Pressure 
  
• Lyme Rages 
  
• Sleep Apnea

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John
Hampstead, New Hampshire, United States

• Joint Pain! Shoulders, knees, ankles, fingers, wrists, neck
  
• Memory Loss? Hard to quantify, but I think this is occurring
  
• Tired. Damned tired all the time
  
• Electric shocks. Unexplained, shocking sensation lasting seconds in fingers, legs
  
• Loss of equilibrium
  
• Dizzy sensation
  
• Also "brain shivers", I hear static on occasion

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Jimmie
Mechanicsville, Maryland, United States
"many more early on I cant remember right now"

• blurry vision 
  
• memory issues 
  
• aches 
  
• nausea 
  
• low immune function 
  
• easy bruising 
  
• dark eye circles 
  
• fatigue 
  
• cold 
  
• early on I had heart skips 
  
• dizziness 
  
• sometimes sore ribs 
  
• shortness of breath 

---

Katie
New Concord, Ohio, United States

• Chest pain
  
• pain in midsection
  
• pain under left rib
  
• fatigue
  
• tiredness
  
• pain in right breast
  

---

Chandler
Holly Springs, North Carolina, United States

• fatigue
  
• dental pain
  
• lichen plantus
  
• memory issues
  
• slow mental recall
  
• aphasia
  
• bell's palsy
  
• left side weakness
  
• brain fog
  
• depression
  
• weight gain
  
• headaches 
  

---

Cheryl

Alabama, United States

• Memory loss
  
• body aches
  
• eye floaters
  
• intense itching
  
• crawling sensations
  
• migraines
  
• weakness in hands
  
• hives
  
• swelling
  
• alternating swelling lymph nodes
  
• cognitive problems(dropping things, walking into walls)
  
• digestive issues
  

---

Cheryl
Denver, Colorado, United States

• Panic attacks
  
• constant anxiety
  
• lichen sclorisis (genital area)
  
• severe constipation
  
• loss of appetite
  
• hunger for air
  
• lower back pain
  
• severe shoulder and hip joint pain
  
• metal taste in mouth
  
• low energy
  
• extreme fatigue
  
• small bowel intussception (due to parasites) muscle tension/spasms
  
• tingling in hands and feet
  
• numbness in arms
  
• nerve hot spot on tricep
  
• feeling of getting dumber
  
• acid reflux
  
• upper back burning
  
• floaters in eyes
  
• feeling like I was always going to pass out
  

---

Kelly
Bradenton, Florida, United States
"healthy before tick bite 1996"

• My bones felt like they were breaking 
  
• Horrific headache/migraine 
  
• constant stabbing eye pain 
  
• stabbing head pain 
  
• Excruciating neck pain 
  
• Excruciating back pain 
  
• My spine felt like someone was trying to pull it out feet cold 
  
• chemical sensitive 
  
• My head felt like it was blown up 
  
• Every muscle in my body ached and constricted 
• Every joint in my body hurt and a few of my finger joints were swollen 
  
• Hundreds of muscle spasms/twitches all over my body 
  
• My hands and feet were going numb 
  
• I lost the sensation in my skin 
  
• My skin burned in patches 
  
• trouble breathing, like I just could not get enough air in my lungs 
  
• could no longer walk without assistance 
  
• heart fluttering, skipping, vibrating mitral 
  
• Valve prolaspe 
  
• irregular heart beat 
  
• Atrial Vaso 
• spasms 
  
• loss of bowls 
  
• diarrhea 
  
• urgency to urinate 
  
• Had rashes on and off all over my body 
  
• No short term memory 
  
• Disabling fatique 
  
• My legs felt like they would collapse from under me fevers on and off 
  
• Sore throat 
  
• Lymph glands throat and under my arms swollen Unrelenting Insomnia 
  
• Cognative impairment 
  
• Double Vision- Blurry vision- Floaters 
  
• Tunel vision 
  
• Temporary blindness 
  
• stabbing eye pain 
  
• optic neuritis 
  
• optic migraine 
  
• slurred speech 
  
• tremors etc.etc.etc. 
  
• extreme abdominal pain 
  

---

Jennifer
Atlanta, Georgia, United States

• Chronic sinus infections 
  
• TMJ 
  
• Osteoarthritis in hands, hip and shoulder 
  
• Difficulty finding words 
  
• Room to room memory loss 
  
• Difficulty remembering names 
  
• Severe debilitating headaches 
  
• Numbness in hands upon waking 
  
• Inability to remember dreams 
  
• Chronic fatigue 
  
• Mental fog 
  
• Difficulty walking 
  
• Exercise aversion 
  
• Sleep disturbances 
  
• Crawling skin 
  
• Hair loss 
  
• Scales on facial skin 
  
• Floaters in eyes 
  
• Worsening vision 
  
• Eustachian tube dysfunction 
  
• Extreme tightness in neck 
  
• Shoulders continually hunched up 
  
• Loss of libido 
  
• Hot flashes unrelated to menopause 
  
• Loss of interest in life's activities 
  

Capri
Stafford, Virginia, United States

• Ear pain and sensitivity 
  
• ringing in ears 
  
• tiredness 
  
• stomach pain 
  
• uncontrollable crying 
  
• irritableness 
  
• pain that pops up in odd places suddenly 
  
• headaches 
  
• joint pain 
  
• shooting pains

---

Jessica
Ewing, New Jersey, United States
"All symptoms wax and wane depending on stress level or for some unknown reason"

• Muscle pain 
  
• joint pain 
  
• depression- will always need to be on antidepressant 
• anxiety-need to be on antianxiety as needed 
  
• episodes of having difficulty focusing and concentration 
• moodiness 
  
• parathesia-tingling feeling or pins and needle feeling in arms and legs 
  
• pain on bottom of feet upon getting out of better -(maybe co infection and not everyday) 
  
• memory loss-short and long term 
  
• difficulty walking when symptomatic symptoms worsen depending on stress level, weather changes, menstrual cycle (week prior-worst) 
  
• some headaches 
  
• neck pain 
  
• joints make creaking noises at times 
  
• tinnitus-ringing in ears 
  
• muscle fatigue-feeling that I can only imagine ppl have after running a marathon 
  
• difficulty climbing stairs during flare ups 
  
• exhaustion 
  
• sleep issues-resolved when using Melatonin and antianxiey hyperreflexia 
  
• suicidal thoughts-in the past 
  
• very bad back pain- acupuncture is the only thing that helps 
  
• loss of appetite 
  
• chest pain-actual pain at the site where breasts meet and it seems like its muscle and bone pain....not heart related 
  
• reflux 
  
• nausea 
  
• vomiting 
  
• brain fog-feeling like your thoughts are in a deep fog not really having thoughts like I used to (that internal dialog-could be result of antidepressant though) 
  
• rashes
  
• night sweats (centered around menstrual cycle)
  
• areas of numbness
  
• malaise
  
• sometimes weird electrical type of pulsation in groin area 
• hearing a thumping sound in ear.....but not heartbeat sound
  
• sleeping too much
  
• periods of incontinence
  
• constipation-could be from meds,though again all have waxed and waned throughout the past 6 yrs
  

---

Cindy
Burke, Virginia, United States

• Knee pain
  
• neck pain
  
• excruciating headaches
  
• migraines
  
• skin crawling
  
• internal vibrations
  
• rib pain
  
• bladder discomfort
  
• irregular heartbeat
  
• tingling in various body parts
  
• wrist and ankle pain
  
• exhaustion
  
• insomnia
  
• brain fog
  
• all over body pain
  
• fevers
  
• air hunger
  
• sweats
  
• chills
  
• floaters in eyes
  
• muffled hearing

---

Claudia
Freehold, New Jersey, United States
"ok, i've had lyme for more than 25yrs and over the course of time have had a wide range of symptoms. i'll do my best to recall them all."

• severe headaches
  
• extreme fatigue
  
• muscle weakness/pain/spasms, loss of muscle tone
  
• blurred vision
  
• optic atrophy
  
• nerve conduction defects including: loss of reflexes, tingling sensations and numbness of extremities, weakness and partial paralysis of limbs
  
• cranial nerve related symptoms including: difficulty speaking, dizziness, sloping shoulders, photosensitivity, drooping eyelids, and vocal cord problems 
  
• insomnia
  
• cognitive deficits including: memory loss, brain fog, confusion, problems w/ concentration, difficulty w/ word finding
  
• psychiatric manifestations including: sense of depersonalization, depression, mood swings, suicidal tendencies 
  
• chest pain
  
• heart palpitations
  
• joint pain/stiffness
  
• nausea
  
• loss of appetite
  
• anorexia
  
• abnormalities w/ liver function
  
• neck stiffness
  
• swollen glands
  
• severe night sweats
  
• classic fibromyalgia related pain symptoms including: severe overall tenderness/soreness
  
• shortness of breath
  
• neuralgia
  
• poor circulation 
  

---

Claudia
Lehi, Utah, United States
"None of these symptoms are there at once - they all come and go, not sure what triggers the flare ups."

• muscle weakness, especially in neck and shoulders
  
• foggy thinking
  
• poor memory
  
• deliriousness, answering my own questions
  
• sensitivity to sounds
  
• sensitivity to taking in info. around me (many times I've turned my children away saying, "I just don't know what you're saying." because I'm unable to mentally digest what they're saying and how I should respond
  
• feeling mentally numb
  
• slow digestion
  
• never refreshed in morning
  
• heavy eyes, sleepy all the time
  
• pain in right shoulder
  
• shakiness
  
• pain in joints, especially wrists, fingers, and back
  
• "wavy" thinking - even on good days this "wavy thinking" keeps me from fully taking in life around me
  
• "wavy" vision that goes along with the wavy thinking - I just can't see quite right
  
• vision "anemia" can't focus on anything for long periods of time
  
• feelings of poor circulation in brain
  
• never knowing what set of symptoms I'll be waking up to
  
• dizziness
  
• heart racing for no apparent reason
  
• out of breath without having done anything strenuous
  
• flare ups of what I call "super icky feeling in brain"
• strange glitches in vision - like suddenly seeing a massive windmill, while driving, do a sudden shift and return to its place
• losing muscle control - almost Parkinson like symptoms of head bobbing
  
• Gut dysbiosis AKA leaky gut (took antibiotics for months at a time during teenage years for acne, ate lots of junk food, had a lot of stress...no wonder, right? 

---

Ariella
Ashland, Oregano, United States
"I wish I could think of the rest..."

• Dislocation of adams apple
  
• Fallopian tube cysts
  
• Horrible, stabbing pain in knees, elbows, fingers, toes, and back. (not all the time, some days are better than others)
  
• Really bad eyesight and multiple big dark eye floaters
  
• Inability to really concentrate (especially on math, and essays)
  
• Everything irritates my skin: clothing, hair, jewelry, and products with harsh chemicals.
  
• Every time I take a shower or bath I get little red dots all over me.
  
• Insomnia, and oversleeping... For example sometimes I'm extremely tired and I can't go to sleep, and then sometimes I'll wake up after a 15 hour nap and still feel like I need to sleep more.
  
• Eye pain, and also when I have extreme eye pain, when I close my eyes, I see a bunch of ultraviolet colors and it's distracting.
  
• Paranoia (mainly when I try to fall asleep) I think I hear things in my room and voices and I get extremely scared... So scared I can't get up to turn on the light.
  
• Lethargy, extreme nausea
  
• Horrible weight loss (I'm 102 pounds, and I look like a heroin junkie)
  
• Chronic tonsillitis, and strep throat every year
  
• 2-4 week long menstrual cycle
  
• Very irritable, the smallest thing gets my adrenaline going
  
• Every time I walk too fast, run, or hike (do anything physically demanding) it feels like my heart is going 200 miles an hour, and like I can't get enough air or water. My pulse has gone up to 170 at times, and once I chipped my tooth during an anxiety attack from clenching my jaw and chewing wrong.
  
• Constantly have to move a lot of the times 
  
• Migraines
  
• When I tell myself to do something, I do the opposite, just can't function. Can't say the right things either.
  
• Rib pain, and possible rib deformation.
  
• Twitchiness
  
• Constantly sweating, I go through 3-4 shirts a day. And when I go to school I bring 2 extra t-shirts because I'll sweat through the first two.
  
• Neck crunchiness and stiffness
  
• abdominal pain
  
• Extreme wrenching pain in intestines (causes me to be in fetal position)
  
• Sound/light sensitivity
  
• Severe depression, I'll stare at a wall for hours and not move once
  
• tooth pain/weakness
  
• Shivers
  
• Pain in genital area, can't use tampons during period
  
• Dry, dry, dry skin. (my elbows and knees are purple and scratchy)
  
• Bad circulation, especially in my feet when it is cold out and even not so cold, like 45 degrees
  

Mary Michael
Albuquerque, New Mexico, United States

• Muscle Spasms 
  
• Fatigue 
  
• Lost appetite 
  
• Numbness 
  
• Tingling 
  
• Neck pain 
  
• Headaches 
  
• Lost of weight 
  
• Low grade temperatures 
  
• Irregular menstrals 
  
• Irregular bowel movements 
  
• Dizzyness 
  
• Chest pain 
  
• Hard time breathing 
  
• Irregular blood pressure 
  
• Depression 
  
• Muscle pain 
  
• Joint pain 
  
• Lyme rashes

---

Julianna
East Killingly, Connecticut, United States
"i look back and read what I wrote and think WHAT was I typing ??"

• headaches 
  
• stiff neck 
  
• flashing lights in the corners of my eyes 
  
• light sensitivity 
  
• noise and vibration sensitivity 
  
• vertigo 
  
• brain fog 
  
• momentary loss of speach 
  
• muscle pain and stiffness 
  
• core exhaution 
  
• numbness in face 
  
• lower back pain 
  
• muscle twitches 
  
• insomnia 
  
• heart palps 
  
• anxiety 
  
• restless leg syndrome 
  
• eye pain 
  
• eye tremmors ?? 
  
• it looks like the room shakes back and forth when I didnt move?? 
  
• head to toe pain 
  
• short term memory loss 
  
• depression 
  
• muscle weakness 
  
• heavy legs ..feels like im walking in deep sand shortness of breath 
  
• digestive problems 
  
• strong flare ups just before and during menstration 
  
• sinus pressure 
  
• ear aches and pain ringing in my ears 
  
• heat sensitive 
  
• loss of appetite 
  
• weight loss 
  
• lack of concentration 
  
• low grade temps 
  
• chills 
  
• hand motor skills.. (dificulty holding small objects in my left hand ) 
  
• tingling feeling or creepy crawly feeling in my head 
  
• I cant type or spell anything anymore 
  

---

Samuel
Hackettstown, New Jersey, United States
"Feeling like i dont enjoy music or playing drums iv been playing for 6 years now. I just want to be me again."

• Constant Pressure in forehead/migraine
  
• Horrible Depression
  
• Tingling sensations in body
  
• Temperature changes
  
• Joint Pain
  
• itchy eyes
  
• sleep apnea
  
• sometimes cant comprehend when people talk to me
  
• Food Allergies
  
• bad sense of smell
  
• phantom smell
  
• feeling crazy
  
• feel like going to pass out when standing up after siting down.
  
• change in hearing
  
• earaches
  
• floaters in eyes
  
• Crackling bones
  
• Legs feel like bricks
  
• vertigo
  
• visual hallucinations/floor looks like its moving 
  
• sinusitis
  
• dropping things easily 
  
• constant Neck pressure
  
• not enjoying things like i used too
  
• OCD
  
• pain in sub-lingual vein under tounge
  
• Dont feel able to communicate to people the way i want too
  
• Light Sensitivity
  
• back pain
  
• facial twiching
  
• memory loss
  
• blurred vison/glassy vison
  
• Sound Sensitivity
  
• Anxiety
  
• stomach pains
  
• Chest Pain
  
• Lyme Rage
  
• Visual snow
  
• itching
  
• Stinging in left breast
  
• Brain Fog
  
• popping in ears 
  
• eating disorder
  
• dry skin
  
• cant concentrate 
  
• coated tounge
  
• Insomnia
  
• ringing in ears
  
• depersonalization
  
• Constipation
  
• Over Fatigued
  
• Low libido
  
• Weightloss 
  

---

Julia
Cohoes, New York, United States
"Im 20 and 2 years ago i was able to run 6 miles now i can barley make it up stairs without catching my breath."

• Fatigue
  
• Fog (call it Alice and Wonderland Syndrome) 
• Tired
  
• Fever
  
• Sweating continuously
  
• photophobia(put me in a dark basement and leave me there)
  
• headaches
  
• neck pain
  
• swollen;fingers,knees, toes, hips 
  
• Insomnia
  
• crawling skin feeling
  
• depressed
  
• anxious specially when driving
• mood swings
  

---

Elizabeth
Urbandale, Iowa, United States

• Morphea in upper right, lower left quadrant 
• Sleep disturbances 
  
• Tachychardia 
  
• Shortness of breath 
  
• Weakness in leg muscles 
  
• Anxiety 
  
• Pain in shoulders, numbness, tingling 
  
• No tolerance of heat/cold 
  
• Very cold especially feet 
  
• Chronic sinus 
  
• Rash hives 
  
• Red dot sores/scabs 
  
• Don’t heal very well 
  
• Fatigue 
  
• Waves nausea 
  
• Diarrhea 
  
• Constipation 
  
• Headaches 
  
• Muscle pain 
  
• Electrolyte issues sodium, potassium 
• Fluctuating BP 
  

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Disclaimer:  The symptoms presented on this website were submitted by real people who may or may not have been definitively diagnosed with Lyme Disease.  The symptoms are not intended to diagnose, prevent, treat or cure any illness.  Always seek out a doctor if you feel your health is of concern. 

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