Instead of having a generic list of Lyme Disease symptoms, the symptoms portrayed will be submitted by people enduring 
Lyme Disease such as yourself.  This allows others to compare and contract real symptoms but more importantly 
allows you to see yourself from a different perspective.

Submit your symptoms to Tired of Lyme!

Patti
Ohio, United States
"Where do I begin"

• Optic neuritis
  
• paralysis
  
• lyme migraines
  
• brain fog
  
• leg swelling
  
• heart problems-rapid heartbeat-pain- flutter-ect
  
• lung problems- breathing-excessive mucus ect
  
• severe pain after eating
  
• severe swallowing issues
  
• Major neuro issues
  
• vascular issues
  
• severe fatigue
  
• mini stroke 
  
• fibro myalgia
  
• dental issues
  
• skin problems
  
• endocrine problems

---

Hannah
Janesville, Wisconsin, United States

• Joint pain (esp. knees and elbows, lately wrists too)
  
• Headaches
  
• Neck pain
  
• Stiff neck
  
• Blurry vision
  
• Changes in smell
  
• Ringing in ears
  
• Ear pain
  
• Sensitivity to sound
  
• Twitching
  
• Muscle weakness
  
• Muscle twitching
  
• Foggy brain
  
• Inability to concentrate
  
• Forgetfulness
  
• Back pain
  
• Inability to absorb new information
  
• Weight gain (12 pounds in 1 month)
  
• Moody
  
• Irritability
  
• Eye pain

---

Lisette
Pottstown, Pennsylvania, United States

• Severe neck pain
  
• Throbbing joint pain
  
• Brain fog
  
• Memory problems
  
• Headache
  
• Head pressure
  
• Sinus issues
  
• Ringing in ear
  
• Pressure in ear
  
• Back pain/spasms
  
• Rib pain
  
• Kidney pain
  
• Pain behind left eye
  
• Tremors
  
• Ticks
  
• Drenching night sweats
  
• Occasional day sweats
  
• Low grade fever
  
• Fatigue
  
• Lyme outbursts
  
• Irritability
  
• Mood changes
• Difficulty finding words
  
• Difficulty remembering how to spell
  
• Difficulty remembering names
  
• Nausea
  
• Heartburn

---

Jesse
Ogdensburg, New Jersey, United States
"I'm tired of no one believing me"

• Weak
  
• tired
  
• extreme stomach pains (can't eat certain foods because they put me in the emergency room) 
  
• joint pain in my knees they swell up when I run and it hurts very badly
  
• I am sick all the time
  
• I just started getting migraines almost every day, 
• currently found out I have arthritis 
  
• my bones hurt
  
• I get really bad muscle pains from time to time
  
• I've lost a lot of weight
  
• lost my appetite
  
• I can sleep for days some weeks
  
• I have anxiety, depression
  
• my hormone levels are messed up 
  
• my neck is stiff all the time 
  
• I get extremely bad cramps when I have my period feels like I'm having a baby or being stabbed
  
•  I get very dizzy we thought I had vertigo
  
• some days I can't fall asleep,
  
• I get nauseous
  
• I also throw up on some occasions 
  
• I get lightheaded and feel like I'm going to pass out, my heart races if I walk fast run throw an object and then it feels like I can't breathe, my doctor told me its all in my head
  
• lately my entire body hurts and it's hard to do normal things like driving or carrying anything
  
• I've been forgetting things at school and work
  
• when I talk I sometimes make no sense 
  
• my chest always has pains in it
  
• I wake up to pain everyday
  
• I shake

---

Miss Diagnosed (Renee)
Melbourne, Victoria, Australia
"and the list goes on....."

• swallowing difficulties
• tight throat
• twitching
• crawling
• eye pain
• bell's palsy
• burning skin feeling like acid poured all over me
• EM rash
• livedo lace rash
• costochondritis
• frozen scapula and shoulder stiffness
• chronic abdominal pain/pelvic pain
• head aches
• stabbing pains
• lower back pain
• spinal pain
• itching
• anxiety
• depression
• panic attacks
• paranoia
• menstrual irregularities
• dopey head
• dizzy/vertigo
• ringing in ears feeling
• spacey confusion/feeling drunk
• getting lost/disoriented
• facial pain reflex
• sympathetic dystrophy
• muscle cramps and spasms (muscles lock up) tight chest air hunger
• blotchy skin
• rib pain
• pain extreme

---

Tamara
Massena, New York, United States

• constant fatigue
  
• knee pain
  
• spine pain, not back pain, pain literally in my spine
  
• hip pain that feels like someone stabbing me
  
• finger cramping and pain in the joints
  
• very low libido
  
• headaches
  
• insomnia even though I am extremely tired
  
• forgetfulness
  
• memory loss
  
• numbness in my face
  
• numbness in my hands and feet
  
• mood swings
  
• blurred vision
  
• loose bowels
  
• back pain
  
• facial "tick"

Joanne
Albuquerque, New Mexico, United States
(Originally Wisconsin)

• joint pain
  
• muscle pain
  
• numbness in legs and arms
  
• tingling in legs, arms and hands
  
• electrical shocks through fingers
  
• memory loss
  
• numbness in face
  
• pain in eyes/floaters
  
• 2 lymph nodes on same side swollen and hard
  
• switching everywhere
  
• digestive problems(constipation, pain in stomach)
  
• tail bone pain
  
• joint stiffness
  
• infections in teeth
  
• popping of joints in neck
  
• neck stiffness
  
• nightmares
  
• trouble sleeping
  
• extreme fatigue
  

---

Charlene
Effie, Minnesota, United States

• Headaches
  
• Severe Pain (joints, muscles, bones, you name it)
  
• Severe Fatigue
  
• Mind Fog / Confusion / Thinking one thing and doing another for example, I would tell myself to take the red one take the red one take the red one and i still grab the blue one. Sometimes I would do something and expect a different reaction - like shut the cupboard and wonder why the water didn't turn off. I can't add series of numbers in my mind anymore and math was like... my thing.
  
• Memory Loss
  
• Mood Swings
  
• Twitching Fingers (piano fingers I call them)
  
• hand, leg and arm seizures (particularly at night or high stress days)
  
• sound hallucinations 
  
• jaw pain
  
• tingling - arms, hands, legs and lips mostly
  
• Sound sensitivity
  
• heart skipping beats
  
• taste / smell hallucinations - specifically, bleach
  
• anxiety / depression

---

Lisa
Sheffield, Massachusetts, United States
"I'm sure there's more, but I can't think anymore, my brain will explode... :O)"

• a typical facial pain
  
• fatigue
  
• crawling skin
  
• twitching all over
  
• cramping hands and feet w/sharp shooting pains achy joints 
  
• horrendous neck pain 
  
• memory loss 
  
• difficulty speaking coherently when I'm tired confusion when I'm tired 
  
• sensitivity to light 
  
• sound or too much stimulus 
  
• weepy 
  
• cold
  

---

Barbara
Rushville, Illinois, United States
"Father has Lyme eventually my mother, four brothers and sister have came to same conclusion of ourselves"

• Dizziness
  
• loss of balance
  
• burning sensations
  
• memory loss
  
• lumps on legs and back of neck
  
• creaky, popping neck
  
• back pain
  
• shaking from the inside out almost as if a siezure or diabetic shock
  
• fullness in head
  
• always popping my ears 
  
• sometimes noise is pure annoying yet so is the silence
  
• feeling like insanity
  
• eyes hurt
  
• cannot focus 
  
• see things crawling around in my eyesight(sphirochettes?) 
  
• staring glazeley at nothing , and "clicking" it off and on 
  
• hearing words but not understanding the words, I have to repeat it over and over silently and concentrate on what was said so as to process it, thus, conversation is dull yet some days I cannot shut up
  
• No desire, I used to crotchet, paint, woodwork, play 4 instruments, but cannot seem to get up to or find the desire strong enough to play or concentrate on a project, thus leaving me empty. Yet the creative energy is thrusting through me
  
• Heart palpitations
  
•  Joint at base of big toes are large
  
• knuckles are enlarged
  
• pain minimal most of the time

---

Lori
Gettysburg, Pennsylvania, United States

• joint pain 
  
• neck pain and stiffness 
  
• mental fog 
  
• Can't find the words I'm looking for
  
• fatigue 
  
• loss of libido 
  
• back pain 
  
• tingle sensations in hands and feet 
  
• abdominal pain
  

---

Monica
Clarksville, Tennessee, United States
"just to name a few"

• Forgetfulness
  
• body aches
  
• joint pain
  
• non stop headaches
  
• teeth and jaw pain
  
• neuro tics
  
• tremors
  
• numbness in extremities
  
• tired all the time
  
• no energy
  
• pseudo siezures
  
• difficulty walking at times 
  
• Changes in vision
  
• unable to talk at times or forgetting what I was going to talk about
  
• Muscle cramps
  
• muscle aches
• tingling in all extremities
• facial twitching
• twitching of extremities
• legs feel heavy
• blurry vision
• eyelid twitching
• hair falls out
• pain roams
• anxiety
• depression
• OCD
  

---

Ashley
Toms River, New Jersey, United States
"I just found out I had a heart murmur.. not sure if related?"

• joint, muscle, and nerve pain everywhere 
  
• muscle tightness 
  
• spasms, and twitches 
  
• memory loss 
  
• unable to focus 
  
• heart palpitations 
  
• headache 
  
• loss of appetite 
  
• weakness 
  
• painful sex 
  
• chronic urinary tract infections 
  
• trouble falling and staying asleep 
  
• chronic fatigue 
  
• light sensitivity 
  
• nausea 
  
• depression 
  
• heartburn 
  
• Dizziness 
  
• knee locking 
  
• loss of motivation and passions 

Kristin
Asbury Park, New Jersey, United States

• loss of libido (especially due to oversensitivity to touch)
• menstrual irregularity (considering getting checked for Endomitriosis)
• pelvic, breast and armpit pain/soreness
  
• ear pain
  
• sound sensitivity
  
• buzzing and ringing in ears almost constantly
  
• decreased hearing
  
• constantly repeat myself because I can't remember if I said something out loud or just in my head
  
• air intake doesn't feel sufficient, like I really need more oxygen
  
• seizures
  

---

Christina
Louisville, Kentucky, United States

• Foggy thinking
  
• Gastro-intestinal problems
  
• Migraines
  
• Fatigue
  
• Increased motion sickness 
  
• Hypersensitive hearing, sight sound
  
• Muscle cramps
  
• Nausea
  
• Anxiety
  
• Feeling restless
  
• Dizziness
  
• Air hunger pains
  
• Fevers
  
• Allergies & asthma
  
• Back pain
  
• Forgetfulness
  

---

Emily
Blue Ridge, Virginia, United States
(Also diagnosed with Babesiosis)

• Extreme muscle/bone/joint pain
• Swollen legs
• Extreme fatigue
• Allergies
• Endometriosis
• Gall stones - caused gall bladder to be removed
• Blurred vision
• Ear, neck, jaw pain
• Hearing troubles
• Tremors
• Restlessness, but so tired
• Muscle weakness, can't climb a few steps
• Out of breath from simple tasks
• Hypothyroid (thyroid cysts and nodes and enlarged thyroid)
• Extreme heartburn
• Gastritis
• IBS
• Moodiness
• Can't tolerate stressful situations
• Heat/cold intolerance
• POTS
• Dysautonomia
• Taccycardia - resting HR is around 90-100
• Nerve pain
• Acne
• Restless leg
• Low libido
• Migraines
• Exercise intolerance
• Tired of being tired

---

MJ
Berkley, Massachusetts, United States

• Bells palsy 
  
• fatigue
  
• joint pain 
  
• muscle pain 
  
• night sweats 
  
• hair loss 
  
• amenorrhea 
  
• numbness 
  
• tingling in hands 
  
• feet burning and pain 
  
• Vertigo 
  
• hearing loss
  
• grogginess 
  
• poor memory 
  
• insomnia 
  
• stiff neck 
  
• severe headaches 
  
• palpitations 
  
• over all feeling soo sick 
  
• weak 
  
• joint stiffness 
  
• no libido
  

---

Maisie "Lyme Chick"
New York, United States

• lightheadedness
  
• fainting
  
• fast heartbeat
  
• dizziness
• irregular heartbeat
• rashes
• joint pain 
• muscle pain
  
• twitches 
  
• eye floaters
  
• neck pain/stiffness
  
• migraines
  
• brain fog
  
• insomnia
  
• fatigue
  
• fever
  
• weakness
  
• anxiety
  
• panic attacks

---

Rebekah
Colorado, United States

• Joint/muscle pain 
  
• Migraines 
  
• Weakness/ fatigue 
  
• Nausea/ vomiting 
  
• IBS 
  
• Stomach ulcer 
  
• Fast pulse/ low blood pressure 
  
• Irritability 
  
• Depression 
  
• Anxiety/ panic attacks 
  
• Confusion/ brain fog 
  
• Insomnia 
  
• Low WBC count (neutropenia)/ inability to fight infections 
  
• Anemia/ low iron
  
• B12 deficiency 
  
• Nerve pain(carpal tunnel and thoracic outlet syndrome) 
  
• Heavy menstrual bleeding 
  
• Dry eye and mouth 
  
• Easy bruising and bleeding 
  
• Bloody nose 
  
• Canker sores 
  
• Sore throat 
  
• Not getting enough air when breathing 
  
• Skin sores 
  
• Bell's Palsy 
  
• Yellowing skin 
  
• Allergies

---

Debby
Cheboygan, Michigan, United States

• severe muscle and joint pain 
  
• migraines and pain behind right eye 
  
• blurred vision 
  
• forgetfulness 
  
• inability to mentally grab info that is there 
  
• lower back and neck pain 
  
• extreme fatigue 
  
• insomnia 
  
• skin is drying and thinning 
  
• inability to eat due to feeling full quickly 
  
• weight loss 
  
• pneumonia (more than 1 year no known cause but verified with multiple CT scans) 
  
• loss of libido 
  
• no longer want to be around people (previously very outgoing) 
  
• dizziness 
  
• arthritis (beginning to get "lumpy" knuckles) 
  
• gall stones (had gallbladder removed 18 months ago but still have severe pain in the area almost constantly) 
  
• irritability 
  
• hip bursitis 
  
• loss of motivation

1 2 3 4 5 6 7

Next →

Disclaimer:  The symptoms presented on this website were submitted by real people who may or may not have been definitively diagnosed with Lyme Disease.  The symptoms are not intended to diagnose, prevent, treat or cure any illness.  Always seek out a doctor if you feel your health is of concern.

---

Send Tired of Lyme a list of your symptoms