Melinda
Leawood, Kansas, United States

• flu-like symptoms
• "food-poisoning-like" symptoms
• headaches that I had never had before
• aches and pains throughout body
• fatigue and more fatigue - from doing nothing
• ability to sleep all night and most of the day
• months later insomnia came along
• no rhyme and reason to whether I'd be experiencing the fatigue or the insomnia
• forgetfulness
• doing dumb things - way more than normal
• anxiety
• upset stomach
• diarrhea, often severe diarrhea
• dizziness
• back pain

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Amanda
Rye, New York, United States

• numbness of fingers, arms, & legs
• headache
• throbbing pain in chest, under arm, & heart
• tightness in chest (@ times I feel like I can't breath at all), Shortness of breath
• tiredness
• light sensitive
• sound sensitive
• I hear the sound of humming a lot
• stiffness in my joints such as my knees & elbows
• shakiness
• BEING SCARED

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Samantha
Baton Rouge, Louisiana, United States

• tender head
• brain fog
• unable to focus on reading a sentence
• confusion
• anxiety attacks
• feverish sweats
• migraines
• headaches
• FATIGUE!!!!!!
• insomnia
• so weak you cant walk
• bruising very easily
• veryyy light sensitive
• all senses heightened
• feeling blah
• NO ambition or drive
• white tongue
• numb tongue
• cognitive problems
• memory shot to hell
• neck/ head muscle aches
• stiff muscles
• extremely chapped lips
• depth perception askew/ feeling like you are watching a movie/ not real life
• moody, aggravated, angry
• out of breath easily
• trouble catching your breath at all
• using an extreme amount of energy to do simple daily tasks
• hot flashes

---

Lester
Memphis, Tennessee, United States

• hot flashes
• stomach pain
• chest congestion
• sinus swelling
• heavy sweating

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Jeanne
Baltimore, Maryland, United States
" Have not yet been diagnoses, first test with Dr. negative, going to Infectious Disease doctor next month..."

• Neck Pain
• Low back pain
• mid back pain
• rib pain
• tingling in hands
• joint pain (hips, knuckles, knees)
• stomach issues (IBS)
• jaw pain
• all teeth hurt
• headaches
• brain fog
• electric shocks
• low body temperature
• low grade fevers
• inflammation
• brain fog
• say the wrong word
• feels like I am going to pass out
• hearing - ringing in ears
• blurred vision
  

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Julie
Houston, Texas, United States

• Fatigue
  
• headache/migraine
  
• lack of energy
  
• puffy face
  
• eye swelling
  
• joint pain
  
• muscle and joint stiffness
  
• stiff neck
  
• back pain
  
• brain fog
  
• irritability
  
• insomnia
  
• sleep disturbance
  
• depression
  
• twitching
  
• word finding
  
• anxiety
  
• mood swings
  
• confusion
  
• poor memory
  
• vision changes
  
• watery eyes
  
• ear pain
  
• facial and chest rash
  
• swollen/painful lymph nodes
  
• flu-like feeling
  
• noise sensitivity
  
• lack of focus or concentration
  
• overwhelming desire to sit or lay down
  
• stomach pain
  
• heartburn/ulcers
  
• supplement intolerance
  
• easily overwhelmed
  
• candida
  
• heat intolerance
  
• cold intolerance
  
• sore throat
  

Elizabeth
Minden, United States

• Hypersensitive to touch on my back (unable to get dressed some days) avoided all hugs and any stings on clothing. Fine touch was way worse then harder flat palm on my back.
• Optic nerve disconnect-my eyes weren't tracking together
• Loss of balance

"Then I got my diagnosis. Now all those symptoms are way better, but I have new ones. Not sure if it's lyme or co-infection caused, or caused by die off, or reaction to medication."

• Constipation
• Random muscles constricting horribly
• Food aversions to onions and garlic
• Freezing cold or burning hot (extreme temperatures)
• Brain fog and toxicity
• Constant dehydration
• Wavering appetite
• Hair loss like crazy
• Anxiety
• Easily overwhelmed
• Sleep a lot
• Super low on energy

---

Sarah
Emporia, Kansas, Unites States

• depression
  
• anxiety
  
• insomnia
  
• bone-crushing fatigue
  
• migraines
  
• ataxia
  
• tremors
  
• fibro pain
  
• sensitivity to light and noise
  
• sensitivity to touch
  
• foot pain
  
• arthritis pain
  
• miscarriages (3)
  
• backwards autonomic functions such as adrenal, cortisol, blood pressure and pulse rate etc
  
• IBS
  
• adrenal fatigue
  
• low testerone
  
• low blood pressure
  
• weak limbs
  
• weak grip
  
• vertigo 
  

---

Emmanuel
Nairobi, Nairobi, Kenya

• Headache
• Sweating
• Pain in the chest
• Joint pains
• Lack of appetite, feels like everything tastes bitter
• Cold: running nose, coughing and sneezing
• Physical body exhaustion

---

Chantelle
Darwin, Northern Territory, Australia

• Hair loss
• hearing loss
• ringing in the ears
• photophobia
• floater in vision
• headaches/migraines
• problems with sinuses
• black eyes
• lack of concentration
• not being able to verbalize words
• brain 'fog'
• short term memory problems
• depression
• anxiety
• mouth ulcers
• tooth decay
• sore throat
• swollen glands
• excessive urination
• extreme thirst
• dry mouth
• chest pain
• spider veins
• irregular menstrual cycle
• PMS
• food intolerance
• extreme fatigue
• difficulty sleeping
• hot flushes
• extreme muscle and joint pain including fingernails and teeth

---

Mary
Livermore, California, United States

• hyperactivity
• lack of concentration
• inability to read
• insomnia
• sleep apnea
• blurry vision
• scratchy eyes
• loss of libido
• severe foot pain
• rapid/hard heart beat
• tinnitus
• pressure in one ear
• headache
• inability to think extreme
• poor working /short term memory
• irritability
• feelings of guilt
• excessive emotional sensitivity
• nausea/vomiting
• tremors
• twitching
• itchy crawling skin
• mini seizures/jerks
• anxiety
• inability to figure out a simple problem
• feeling like I was buzzing

Dorrene
Rock Island, Illinois, United States

• Fatigue, fatigue, fatigue!
• Joint pain
• memory loss and cognitive problems
• eye problems
• heart palpitations
• now lots of hair loss

---

Evelyn
Mt. Pocono, Pennsylvania, United States

• Numbness in legs, hands
• Pain in legs and in the head
• Always tired
• Pain
• Blur visions
• Seizures
• Shakes
• Faint

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Dixie
Colona, Illinois, United States
"Had this for 21 years..Have had the all kinds of treatments and it works for a while now I am getting worst again.."

• Fatigue and joint pain
  
• the feeling of having the flu all the time..
  
• Hair loss
  
• stomach pain
  
• headaches the list goes on and on
  

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Viki
Pennsylvania, United States

• Bladder Leakage
• Exhaustion
• Rash that itches more than one can even begin to describe
• Weird rash - spread in strange places, one lump at a time
• Did I mention the itchy rash?
• High blood pressure
• Headaches
• Hand/Foot swelling
• Fluid collecting in ears
• Nausea
• Heart Palpitations
• Fluid retention
• Diarrhea

---

Suzanne
Denton, Maryland, United States
I'm not sure if I have Lyme Disease, still waiting on the results. However, these are my symptoms.

• Bells Palsy - Left side of face
• Headaches (everyday, sometimes intense)
• Eye Pain
• Stabbing Pain in temples
• Floaters in my eyes
• Feeling of tired limbs (arms and legs...just feel heavy)
• Tenderness in arm and ribs (left side)
• Ringing in my ears and a fluttering sound
• Neck stiffness (as if I slept wrong)
• Waking up constantly in the middle of the night
• Extreme fatigue
• Severe pain in arms and legs (almost like growing pains but A LOT WORSE)
• Night Sweats
• Moodiness and Irritability
• Scalp feels like it's tingling or "crawling"
• Pain that pops up in different places
• Sensitivity to the cold (air conditioning)
• Constant spasms in my feet (Charlie Horses)
• Tightening of Calve Muscles
• Dizziness and Feeling of Motion Sickness

---

Allison
Connecticut, United States

• extreme fatigue
• foggy head
• neck pain stiffness
• forgetfulness
• vision changes for the negative
• numbness & tingling in fingers and face
• back pain
• kidney issues
• jaw pain
• cant get the right words together
• taste and smell changes
• very emotionally sensitive
• weight loss
• diff concentrating
• painful joints and bones esp knees

---

Alex
Sheffield, Massachusetts, United States

• Intense peripheral neuropathy
• fatigue
• universal muscle twitching
• muscle aches
• reduced strength
• general "tenseness" that generates various difficulties in social situations
• extreme irritability and occasional rage
• intense anxiety/panic attacks to the point that it was diagnosed as GAD and Panic disorder
• sexual dysfunction/loss of libido

---

Kevin
Dunmow, Essex, United Kingdom

• joint pain
  
• stiffness
  
• headaches
  
• insomnia
  
• irratability
  
• memory loss
  

---

Cindy
Port Saint Lucie, Florida, United States
"Tick bite in 88/89(large engorged tick behind right ear, burnt off by pediatrician after failed attempt to remove completely at home) Tick either acquired in florida or while vacationing in Vermont/Canada for the summer.  Still have large freckle-like scar. 
Also visited Indiana and California in the past
Bit by nymph form of tick in Georgia in 2006(unsure of actual date or year, just remember removing the tick from my right side of abdomen, still have freckle like scar)"

• Joint pain/swelling
• Joint stiffness, especially neck/back
• Muscle pain or cramps
• Creaking, popping, or cracking joints
• Aches or burning in palms and/or soles of feet
• Heel pain
• Gait disturbance(slight drag of right foot in past)
• Sore soles especially in am
• Clumsiness
• Pain that moves to different joints
• Fibromyalgia
• Intermittent, ice pick head pain
• Burning or stabbing pains in odd shifting places
• Sudden lightning like jabs
• Tremors or unexplained shaking (whole body feels like its shaking, Parkinson-like “no” head shaking)
• Numbness in parts of the body and/or extremities
• Tingling sensations (like an insect crawling on the skin)
• Pinprick sensations
• Pressure in the head
• Lightheadedness, vertigo
• Twitching of muscles
• Poor balance, dizziness
• Constant low body temperature(below 98.6, mine stays at 97 to 97.4)
• Occasionally hearing music/sounds others cant hear
• Restless legs syndrome
• Memory loss (short and long term)
• Confusion, difficulty thinking
• “brain fog” (inability to concentrate, inattention)
• Declining performance in school or work
• Slurred speech
• Trouble finding the right word
• Occasional dyslexia
• Disorientation
• Mood swings, irritability
• Easy frustration
• Unusual depression
• Crying impulses for no reason
• Over emotional reactions, crying easily
• Panic, anxiety attacks
• Aggression, rage
• Insomnia
• Obsessive compulsive behaviours
• Suicidal thoughts
• Paranoia
• Feeling lost
• Depersonalization(losing touch with reality, feeling “unreal”)
• Bipolar disorder
• stiff or painful neck
• twitching in facial muscles/other muscles (usually my eyelids and mouth twitch on face, miscellaneous places in body, including organs)
• painful teeth
• drippy nose
• floaters (spots seen in vision, remind me of bubbles that move when you look around)
• pain/pressure in eyes
• seeing flashing lights
• decreased hearing in one or both ears(right)
• ringing and buzzing in ears (mostly the right ear, super high pitched constantly)
• sensitivity to sound(too many noises at once make me feel electric and crazy!)
• constipation
• abdominal pains
• irritable bladder
• bloating
• anorexia
• night sweats
• unexplained chills(make my whole body twitch/jump when it happens)
• low blood pressure
• loss of sex drive
• sexual dysfunction
• unexplained menstrual pain,irregularity
• unexplained breast pain and nipple discharge( back in high school pre kids, discharge culture showed lactation)
• Endometriosis/PCOS/PID
• Malaise
• Swollen glands(persistent swollen gland right side under ear/jaw)
• Itching
• Continual bladder infections/yeast

Diagnosed in past with:

• Unrestful sleep, cant remember proper term. Interupted REM cycle??
• Carpal tunnel syndrome
• Depression/bipolar
• TMJ (jaw pain)
• Fibromyalgia
• Chronic Fatigue syndrome
• Epstein barr virus infection

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Disclaimer:  The symptoms presented on this website were submitted by real people who may or may not have been definitively diagnosed with Lyme Disease.  The symptoms are not intended to diagnose, prevent, treat or cure any illness.  Always seek out a doctor if you feel your health is of concern.

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