Kathy
Toccoa, Georgia, United States

• fatigue
  
• muscle pain
  
• joint pain
  
• visual problems/bluriness
  
• optic neuritis
  
• pins and needle sensations in hands and feet
  
• neuropathy
  
• creepy crawly sensations on my skin
  
• mental fog, can't remember simple things
  
• chest pain
  
• headaches
  
• ibs symptoms
  
• shortness of breath
  
• some incontinence
  
• anxiety/panic attacks
  
• depression
  
• insomnia
  
• heat intolerance
  
• extreme fluid retention
  

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Melissa
Bradenton, Florida, United States
"breathing is normal, no headaches, no dry mouth or sore throat all normal, no pain anywhere else.  I eat well.  I have not loss or gained wt.  I do not smoke.  I am a runner 5 to 7 miles 3 to 5 times per week;  run inside on a treadmill most of the time.  5' 8", 148 pounds, 48 yo female"

• intermittent one eye twitching everyday so far (3 days)
  
• edema in my legs daily (developed more noticeable past 6 mo) can see swelling lines from socks and where clothing or blankets have lied on top of my skin on my lower legs, 
  
• pain in both sides of my auxiliary area daily
  
• tingling mostly in the right arm, daily
  
• swollen lymph nodes in both under arm (aux area) pain when touched, daily
  
• irregular heart beat daily
  
• skin seems to be more dry the past 6 months
  

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Jennifer
Lino Lake, Minnesota, United States
"These thing all wax and wane, some are new, some are old, I have *starred the ones I hate the most."

• *Night Sweats
  
• *Nausea
  
• *Flu like feeling
  
• Floaters
  
• Numbness in hands and toes off and on
  
• *Anxiety 
  
• *Depression
  
• Brain fog/disorientation
  
• Sensitivity to light and sound
  
• Heat sensitivity
  
• Skin blotchy (white spots that wont tan)
  
• Joint stiffness (hips mainly)
  
• Migrating joint pain/muscle twinges
  
• *Digestive problems
  
• Tremor
  
• Inner vibrating sensation
  
• Malabsorption
  
• Vitamin Deficiency
  
• Feeling of fever yet temp is 97.6
  
• Flashes of light in vision
  
• Light headed upon standing
  
• TMJ
  
• *Ear and balance problems
  
• **Crawling skin sensation
  
• Blue finger nails, cold extremities
  
• Blood shot eyes
  
• *Muscle atrophy in calves
  
• Burning, tight pain in shoulders
  
• Ovarian Cysts
  
• Acne
  
• Dryness of eyes and skin
  
• *Hangover feeling (without alcohol consumption)
  
• Food sensitivities
  
• Liver dysfunction
  
• *Heart palpitations
  
• *Vertigo
  
• *Saddness, weaping, hopelessness, frustration
  

---

Nailah
Owings Mills, Maryland, United States

• head pressure
  
• feeling of head being squeezed 24/7
  
• stiff neck
  
• neck muscles sore
  
• ringing in ears
  
• tremor
  
• tingling
  
• dizziness
  

---

Sarah
California, United States

• Nausea
• Dizziness
• Crawling sensations on skin
• Headaches
• Stabbing pain in head
• Abdominal pain
• Stomach rash
• Diarrhea
• Constipation
• GERD
• Severe chest pains
• Weakness
• Fatigue
• Depression
• Anxiety
• IBS
• Widespread Joint pain
• Aching bones
• Chronic sinus infection
• Sinus pain
• Dyslexia (didn't have it before)
• Ringing in ears
• Ear pain
• Throat pain
• Constant colds/flu
• Flu-like symptoms
• Blurred vision
• Eye pain
• Shallow breathing
• Heart palpitations
• Confusion
• Short-term memory loss
• Getting lost
• Insomnia
• Sleep Paralysis
• PMS
• Stomach pains
• Fibromyalgia
• Hot flashes
• Cold hands and feet
• Terrible immune system
• Food allergies
• Enlarged Thyroid
• General feeling of going crazy
• Aggressive behavior
• Irritability
• Sleeping too much
• Suicidal thoughts
• Lightheaded
• Feeling faint
• Difficulty eating
• Carpal Tunnel Syndrome
• Teeth pain
• Muscle twitching
• Muscle weakness
• Congestion
• Reduced sense of smell
• Colorful spots in vision

Shoshana
New York City, New York, United States

• Elevated sed rate (erythrocyte sedimentation rate—indicates inflammation)
  
• Low cortisol levels
  
• Heavy metal poisoning (mercury & arsenic but no cause found; indicates poor liver function)
  
• Hair Loss (linked to low ferritin level)
  
• Vitamin D deficiency 
  
• Low ferritin level (stored iron) [should be 70+ but was 24]
  
• Vulvar vestibulitis 
  
• Fibromyalgia
  
• Vertigo
  
• Dizziness
  
• Poor balance
  
• Leg pain/muscle weakness/extreme difficulty climbing stairs
  
• Aches in neck, shoulder, feet, pelvis
  
• Skin issues (Rosacea may not be related)
  
• Inflammation in general
  
• Sweat profusely
  
• Flushed skin on face
  
• Fatigue
  
• Brain fog
  
• Chest pain
  
• Loss of strength and flexibility (I used to be strong like bull!)
  
• Shortness of breath (especially climbing stairs)
  
• Tingling, numbness, burning or stabbing sensations, shooting pains 
  
• Word retrieval problems
  
• Eyes/Vision: double, blurry, increased floaters, light sensitivity, things look smoky 
  
• Ears/Hearing: buzzing, ringing
  
• If I don’t eat very regularly, I feel weak, shaky and wonky
  

---

Gina
Woodbridge, Virginia, United States

• Muscle spasms
  
• muscle weakness on right side of body
  
• right side facial paralysis
  
• joint inflammation & pain
  
• loss of hearing in right ear
  
• headaches
  
• nausea
  
• vomiting, 
  
• exhaustion
  
• insomnia
  
• weight loss
  
• lower back pain
  
• nerve damage
  

---

Tina
Bluffdale, Utah, United States
"But I look good so I must be making this up, right?!"

• Severe joint pain. Mostly right knee and shoulders. 
• Can't make a fist.
  
• Upper back and neck stiffness
  
• Migraines with vision loss
  
• Weight loss
  
• Brain fog, can't concentrate.
  
• Sensitive to noise and touch
  
• Dizziness and nausea 
  
• Chest pain
  
• Twitching with chest pain
  
• Severe fatigue and muscle pain
  
• Depression and anxiety 
  
• Jaw stiffness
  
• Pain with extreme weather
  

---

Vickie
Small Town, Georgia, United States"I am 100% positive I have had tick bites over the course of my life."

• Muscle twitches (?) in lower legs - looks like worms under the skin, very visible to the eyes. (have had lots of tests with needles in legs, but nothing found).
  
• Excruciatingly tender soles of feet with burning pain over the bottoms and tops of feet; feels as if my skin has been scalded with hot water.
  
• Joints constantly sore with pain that radiates from should to elbow area.
  
• Constant aching of legs from hips to toes (at varying degrees, but never leaves)
  
• Depressed, just thinking about living a long time with these conditions.
  
• Neck pain from herniated cervical disk.
• Constant intestinal problems.
  
• Sore and achy back and sides (believe I may have pleurisy) intermittently.
  

---

Deidra
Hadley, Massachusetts, United States

• brain fog 
  
• irritable
  
• shoulder,left arm soreness
  
• spine soreness
  
• bluish,purpleish fingernails
  
• foogy eyesight
  
• stomach distention
  
• anxiety
  
• depression
  
• loss of appetite
  
• low immune system
  
• head tightness
  
• tight breathing
  

---

Cici
Dallas, Texas, United States

• stiff neck
  
• arm bruising
  
• weight gain
  
• crawling feeling on skin
  
• hair & eyelash loss
  
• skin bumps spreading around nose area
  
• fatigue
  
• light sensitivity
  
• lack of focus
  
• paranoria
  
• swallowing difficulty
  
• dry eyes
  
• floaters in eyes
  
• flashing lights in peripheral at times
  
• skin is horrible
  
• hip pain
  
• cold hands and feet
  
• edema
  

---

Travis
Nebraska, United States

• Tingling tongue/lips
• Fainting
• Panic Attacks
• Vivid dreams
• Insomnia/Frequent Awakenings
• Rapid weight loss
• Numb hands
• One sided weakness in arm and leg
• GI problems (mainly bloating)
• Anxiety
• Depression
• Derealization
• Anti-social behavior
• Extreme fatigue
• Foot pain
• Easy scarring/bruising
• Joint pain and popping

---

Binx
California, United States

• brain fog 
  
• cold hands & feet 
  
• visual floaters 
  
• eye pain 
  
• red, stinging eyes 
  
• photosensitivity 
  
• nausea 
  
• heart palpitations 
  
• heat sensitivity 
  
• burning pain in hands and feet 
  
• spine pain 
  
• facial numbness & tingling 
  
• stocking/glove sensations on calf 
  
• muscle twitching 
  
• bee sting pains all over 
  
• jaw clenching--esp. at night 
  
• night sweats 
  
• nightmares 
  
• mood swings 
  
• crushing fatigue 
  
• muscle weakness--mostly on left side 
  
• circulation problems/hypercoagulation (blood clots) 
  
• petechiae 
  

Lisa
Syracuse, New York, United States

• Bells-palsy 
  
• Tick Bite long red rash -no bulls-eye
  
• brain fog
  
• electrical sensation traveling leg pain
  
• vertigo
  
• feelings of passing out
  
• stiff neck
  
• clicking neck
  
• visual disturbances
  
• eye pain
  
• blurred vision
  
• pin-prick feelings in head
  
• joint pain
  
• difficulty thinking
  
• difficulty speaking
  
• difficulty finding/saying correct words
  
• memory loss
  
• stuttering
  
• menstrual irregularity
  
• weight gain
  
• facial rash/acne
  
• puffiness face and eye lids
  
• edema
  
• triggered gluten intolerance and corn allergies 
• fatigue
  
• digestion problems
  
• heart palpitations and arrhythmia
  
• problems with body adjusting to temperatures 
  
• leg stiffness
  
• athletes foot/fungus
  
• internal yeast
  
• headache
  
• teeth pain
  
• earaches
  

---

Amanda
Pompano Beach, Florida, United States
"Diagnosed with Lyme Disease in 2006. Took antibiotics for 30 days and was told I was cured. Went to another doctor who told me that there was no Lyme Disease in Florida and that I was misdiagnosed and that I was suffering from Migraine with Aura."

• blinding headaches
  
• muscle aches & fatigue
  
• burning pain in fingers
  
• crawling feeling on scalp
  
• crawling wierd feeling in legs & feet
  
• numbness of face
  
• blurred vision
  
• disorientation
  
• short term memory loss
  
• slurred speech
  
• joint pain
  
• heart palpitations
  
• dizziness
  
• loss of balance
  
• insomnia
  
• nausea
  
• weird cravings
  
• sensitivity to light and sound
  
• enhanced smell and taste
  
• mood swings
  
• crying for no apparent reason
  
• neck stiffness
  
• see yellow spots
  
• loss of appetite
  

---

Mary
Connecticut, United States
"First symptom was vaginal/vulvar burning. I went to six Ob/gyns and even the ER and nobody could figure out was was wrong. Was tested for every STD in the book and was negative. I was given creams for possible eczema or hormonal imbalance. Those didn't work. Finally, I was tested for ureaplasma/microplasma because I was having symtpoms of a bladder infection as well. That came up positive. It turns out microplasma is a common co-infection of lyme. Shortly after that diagnosis, my bloodwork came back and was positive for lyme as well. My gyno diagnosed me with vulvodynia (vulvar burning or pain without a known cause) Some studies I found said that a large portion of woman with vulvodynia have lyme disease. No doctors I spoke with seemed to be aware of this. "

"Since my vulvar/vaginal symptoms were the most severe, I wasn't worrying about my other symptoms and didn't even make a connection until I tested positive for lyme. "

• Nerve damage: tingling, numbness, pins and needles especially in feet. 

• Sore muscles and joints
  
• Sore neck and hips and other parts of body on and off throughout the day
  

---

Kathy
Austin, Texas, United States

• numbness and tingling
  
• intermittent headaches
  
• brain fog
  
• mouth sores
  
• nausea
  
• loss of appetite
  
• tinnitus
  
• body aches
  
• tremors
  
• word placement issues
  
• new elevated blood pressure
  
• aching ribs
  
• eye twitching
  

---

Gina
Woodbridge, Virginia, United States

• Migraines
  
• exhaustion
  
• memory loss
  
• extreme joint pain
  
• painful muscle spasms
  

---

Lexie
Merrimack, New Hampshire, United States

• fatigue
• sore neck and sore glands
• sore armpits
• trouble breathing
• asthma
• lots of flu and colds
• sore legs

---

Jamie
Littleton, Colorado, United States

• chronic, constant pain all over the body 
  
• elbows, muscles, collarbones, tendons, bands, 
  
• joints, neck, back, feet, toes, legs, arms, hips, knees 
• sharp and achey pain, will move around as well as stay in a certain area 
• headache 
  
• high pitch buzz in ears 
  
• hard of hearing 
  
• hard to recall words 
  
• stumble over words 
  
• irritable 
  
• extremely fatigued 
  
• sore and stiff joints 
  
• head, sinuses feel similar to having the flu or a cold 
  
• nausea 
  
• sore throat 
  
• thinning, breaking of the hair and nails 
  
• mouth hungry, stomach full 
  
• excessive peeing 
  
• anxiety 
  
• depression 
  
• OCD 
  
• feeling trapped inside your own body 
  

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Disclaimer:  The symptoms presented on this website were submitted by real people who may or may not have been definitively diagnosed with Lyme Disease.  The symptoms are not intended to diagnose, prevent, treat or cure any illness.  Always seek out a doctor if you feel your health is of concern.

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